Tag: Chronic Illness

Female DesignerFemale Designer

“Having to be in an environment where there is constant and intense communication is intimidating. Some chronic diseases come with cognitive degeneration and in my case it is loss of words. People with MS tend to lose their words and for me this happens when I have to speak too much. Usually this is being perceived by other people as language incompetence, lack of communication skills, and sometimes even low levels of intelligence and lack of skills.”

Female DesignerFemale Designer

“The way the day is being structured doesn’t allow for proper rest and MS fatigue is very real. When I experience it I am THAT tired. Sometimes I even fall asleep instantaneously. Again, I am being perceived as lazy and indifferent. Also, MS fatigue usually occurs in the middle of the day, which means I get to start my day in tech utterly exhausted.”

Female DesignerFemale Designer

“When I have 10 out of 12 days, I literally cannot take my meals when needed in order to take my medication. Therefore I either have to change my medication schedule, or eat on the tech table during tech, which will definitely generate and amplify the impression of laziness. Also, people will think I don’t respect them. In order to avoid it, I will most likely have to disclose my medical condition to people regardless of whether I want to or not. Still, this does not guarantee that I will be understood.”